Eric Vilain, M.D., Ph.D. was born in Paris, France and is currently an Associate Professor in the Departments of Human Genetics, Pediatrics and Urology at UCLA. Dr. Vilain received his B.S. in Biochemistry at the Universite Pierre et Marie Curie in 1987 and then his Ph.D. in 1994 at the Pasteur Institute. In 1995, Dr. Vilain received his M.D. at the Faculte de Medecine Necker Enfants Malades. Dr. Vilain assumes the positions of Chief of the Division of Medical Genetics at UCLA, Director of Female Sexual Medicine in the Department of Urology and Graduate Advisor in the Department of Human Genetics. When he was a medical student, his first assignment was a pediatric service taking care of intersexed infants. He was shocked to see how poor the understanding of this condition was, and how many life-altering decisions were made on behalf of the babies. Dr. Vilain has devoted his academic career to the biology of intersexuality. He serves on several national committees on intersexuality. He has received numerous awards, notably from the NIH and the March of Dimes. Dr. Vilain is an expert in the field of the genetics of sexual development. He has deciphered a large number of molecular mechanisms responsible for intersexuality in humans, such as mutations in the sex-determining genes SRY and SOX9. His laboratory is working on the mechanisms of early gonadal development and brain sexual differentiation.
H. Marty Malin, Ph.D. is Professor and Director of the Clinical Studies Program at the Institute for the Advanced Study of Human Sexuality in San Francisco. He was formerly the Manager of the Sexual Disorders Clinic at the Johns Hopkins Hospital and an Instructor in the Department of Psychiatry and Behavioral Sciences at the Johns Hopkins Medical School. He is a Board Certified Clinical Sexologist, Sex Therapist, and Sex Educator, a Life Clinical Fellow of the American Academy of Clinical Sexologists and a member of the Board of Examiners of the American Board of Sexology.
Following 25 years of shame and denial, a series of events caused Jane Goto to re-evaluate. Electing to cast off the shroud of shame, she began to utilize her skills and 25 year’s experience as an adult educator and communicator to help others and, in the process, expedite her own healing.
Jane joined ISNA in 2003 as our Operations Manager in Seattle. She has fielded several thousand e-mails, letters and phone calls from people seeking answers and assistance with the aftermath of unwanted surgeries, secrecy, lies and shame that have traditionally been associated with Disorders of Sex Development.
Jeanne Nollman has 19 years of experience as a Probation Officer in California, two years of graduate education in counseling, and experience as a Counseling Intern in the California State University system. Happily married for 15 years, Jeanne is the mother of two wonderful adopted children. In 2006, Jeanne ran the workshops for affected teenagers at the annual conference of the Androgen Insensitivity Syndrome Support Group, to rave reviews (this was the first time that the conference included a programming track specifically for them). At age 18, Jeanne’s doctors told her partial truths about her diagnosis.
Attorney John M. Allen helped ISNA through the tedious processes of incorporating and successfully filing with the Internal Revenue Service for 501©3 tax exempt status. This infrastructure allows us to obtain funding via tax deductible gifts from individuals and grants from foundations.
John continues his advocacy as the cofounder of the Ruth Ellis Center, a shelter for GLBT teens and young adults in Detroit, MI.
John Otto worked tirelessly to help ISNA archive materials and also assisted Jane on the helpdesk. John holds a MLIS from the University of Washington.
Julie Dorf served as ISNA’s Board Seretary. Julie founded the International Gay & Lesbian Human Rights Commission and served as its Executive Director 1990-2000. She created the organization to protect and advance the human rights of all people and communities subject to discrimination or abuse on the basis of sexual orientation, gender identity or HIV status. Ms. Dorf speaks Russian and spent six years involved with dissident movements in the former Soviet Union prior to founding IGLHRC. Her work and the work of IGLHRC has been widely featured in Time, Newsweek, Los Angeles Times, New York Times, San Francisco Chronicle, Ms.
K.M. Walker worked as Cheryl’s assistant at ISNA, and did a masterly job of running the office and the books, as well as responding to inquiries and requests for information from all over the world. She is a talented musician and works with her partner Chris developing a rapidly growing California company that specializes in green-minded ways of removing, recycling and reusing material hauled from residential and commercial clients.
Katherine Betzer interned at the ISNA in 2003 after spending a semester in the Netherlands studying the Dutch biomedical response to intersex births. While with the ISNA, Katherine helped Executive Director Monica Casper research and compile data on international medical and legal perspectives on female genital surgeries. Katherine graduated from Mount Holyoke College with a BA in Cultural Anthropology and plans to continue her studies on the intersections of health, biomedicine, sexuality and gender identity.
Kim Saviano is an intersexed activist living in Denver and working as a UNIX administrator. She served as Treasurer of the Androgren Insensitivity Syndrome Support Group from 2000 - 2001 and hosted their 2001 national conference. She has spoken at several local organizations and been interviewed for articles about her experiences growing up intersexed. Kimberly recently found herself ready to move beyond the realm of support groups and into advocacy.