Lynnell Stephani Long has been involved with the Intersex Society of North America, officially, since 2000 after she met Cheryl Chase in D.C. at GenderPac’s National Lobby Days. She is a columnist for Identity Magazine, a Chicago LGBTI magazine, where she writes on intersex. In addition to speaking locally in Chicago, Lynnell has spoken on ending intersex genital mutilation in Canada, Wisconsin, New York, Georgia, Michigan, Minnesota, Indiana, Colorado, Texas, Tennessee, and Washington, D.C.
She is also a photographer, published poet, and international performance artist.
Mary Kelterborn was ISNA’s second intern and did a fantastic job of assisting Cheryl in several different capacities, including organizing ISNA’s large presence at the Creating Change conference. Mary is now at Lambda Legal in New York City.
ISNA’s Medical Advisory Board included some of the nation’s leading experts in pediatric endocrinology, urology, general pediatrics, nursing, psychiatry, psychology, social work, and bioethics.
Megan Curran worked with ISNA in conjuction with the Children’s Hospital of Oakland to describe the current management of newborns with intersex conditions at U.S. children’s hospitals. Megan brought to ISNA her experience of advocating for underrecognized populations, such as women with mood disorders and children experiencing violence in their homes. She has a BA from Stanford University in Human Biology, and plans to practice developmental and behavioral pediatrics in the future.
Michael Davis volunteered his time and energy to help ISNA with post-production work. His generosity enabled ISNA to create and distribute its videos.
Monica J. Casper, PhD, served as our Executive Director in 2003. Monica is an internationally recognized medical sociologist and biomedical ethicist who brought a wealth of experience in research and policy advocacy to her leadership of ISNA. She is author of the award-winning and groundbreaking book, The Making of the Unborn Patient: A Social Anatomy of Fetal Surgery, which examines the rise of the controversial practice of operating on unborn babies. Framing fetal surgery as a women’s health issue, she addresses profound questions about society’s compulsion to normalize its members, especially those at the beginnings of life, and to subject otherwise healthy individuals to risky medical treatment. Monica is Director of Women’s and Gender Studies and Associate Professor of Sociology at Vanderbilt University. She and her family live in Nashville.
Olivia Kienzel was ISNA’s very first intern and was an invaluable assistant to Cheryl. Today she’s a freelance writer based in southern California.
Phyllis Ward has written, produced and directed documentaries and magazine segments for local, national and international television markets. Her work has won over three dozen major broadcasting awards. Phyllis created Is it a Boy or Girl? and Banished, Living with Leposy for the Discovery Channel for broadcast in the year 2000. Phyllis was the producer/director/writer of My Country, an award-winning hour-long documentary on the disability rights movement and the Americans with Disability Act that aired on PBS. Her other credits include twenty hour-long documentaries on such subjects as education, changing relationships in the United States, trauma care, stress, and mental illness, and news magazine segments for ABC News’ Primetime Live, CBS News’ Street Stories and ABC News’ 20/20. We are particularly grateful to Phyllis for having created Total Patient Care for us.
Rebecca Baughman Kerns is board treasurer. “I hope that those I contact through ISNA see giving to this fabulous organization as I do; a chance to share the necessary resources and talents that we all have to make ISNA stronger, wiser and more relevant. When one gives to ISNA, you are giving to the future of better education, understanding and treatment of those with disorders of sex development. Giving to ISNA helps to ensure that a better future is available for the lives of families and children born with disorders of sex development.” Rebecca has seven years of experience in non-profit fundraising for various health organizations, as well as five years of marketing experience.
Robin Mathias helped ISNA incorporate and grow into the organization it is today. Robin is Executive Consultant for FourThought Group, Inc., where she is creating best practices for Medicaid policy, systems and operations. Robin’s own website, MathiasConsulting.com is a valuable resource for the insurance industry and publicly financed healthcare programs in their fight to dramatically decrease the expenses caused by healthcare fraud. She speaks about Medicaid reform and healthcare fraud and abuse at conferences nationwide, including the Medicaid Managed Care Congress, Managing Managed Care Claims, and Association of Certified Fraud Examiner’s Insurance Fraud Conference. She is interviewed in the media and made her television debut on CNBC in a live interview about alleged healthcare fraud at Tenet Hospitals. Robin is a board member for the Gay and Lesbian Medical Association.