Kim Saviano at 4th Forum on Perinatal/Neonatal Ethical issues

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There is apparently no website for this, so below is a transcript of the brochure. Intersex presentations are on the last day.

4th Forum on Perinatal/Neonatal Ethical issues
Wednesday, Thursday, and Friday
May 11, 12, and 13, 2005

Sponsored by Memorial Hospital
Colorado Springs, Colorado

For More Information
Call (719) 365-6850

Antlers Hilton Colorado Springs Hotel
Colorado Springs, CO

COURSE OBJECTIVES
At the completion of this conference, the participant should be able to:
* Describe the components of an effective newborn screening system.
* Discuss some of the controversies surrounding implementation of expanded newborn screening.
* Describe the spectrum of technologies that are employed in newborn screening.
* Explain the clinical significance of expanded screening in newborns.
* Ethical and Policy Issues of expanded Newborn screening
* Identify the different screening and testing options offered to pregnant women/couples.
* Discuss the ethical issues associated with various decisions regarding genetic screening.
* Discuss whether egg freezing, preimplanation genetic diagnosis and cloning represents scientific progress or an ethical dilemma.
* Identify ways science/medicine harmonize with law.
* Discuss the way in which values are transmitted genetically, culturally, and legally.
* Analyze the future implications of sex assignment in a newborn with ambiguous genitalia.
* Explain the benefits and risks of prenatal surgery.
* Discuss communication strategies when reviewing the results of prenatal testing with anxious parents.
* Identify ways in which providers can optimize the informed consent process for treatments in the NICU.
* Identify potential parental reactions to withdrawing/withholding treatment in the NICU.
* Define gestational age range and birth weight range at which survival is possible and at which survival is more likely that non-survival.
* Describe trends in thresholds of viability in regard to changing perinatal practices.
* Delineate lethal congenital anomalies from non-lethal malformations with a probability of profound neurodevelopmental effects or markedly shortened lifespan.

WHO SHOULD ATTEND
This conference will be of interst to professionals in the fields of medicine, nursing, law, medical social work, education, spiritual education, and insurance. It will also be of interest to NICU graduates and their families.

CONTINUING EDUCATION CREDITS
Memorial Hospital is accredited by the Colorado Medical Society to provide continuing medical education for physicians. Memorial Hospital designates this continuing medical education activity for a maximum of 20.4 Category 1 credits towards the AMA Physician’s Recognition Award. Each physician should claim only those hours of credit actually spent in educational activity.

24.5 Nursing Contact hours. Memorial Hospital is an approved provider of continuing education by the Colorado Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation. Provider #MEH-0204. Expiration date: 02/28/07. In unable to attend all three days, contact hours will be adjusted.

ABOUT COLORADO SPRINGS CHILDREN’S HOSPITAL AT MEMORIAL HOSPITAL
The Colorado Springs Children’s Hospital is a NACHRI approved hospital within Memorial Hospital. Memorial Hospital has long set the standard for state-of-the-art health care in Colorado Springs. CSCH provides comprehensive medical and surgical care for children from neonates to adolescents, for any type of illness or injury. CSCH provides an 11 bed Pediatric Intensive Care Unit, a 60 bed Level III Neonatal Intensive Care Unit and a 30 bed pediatric ward.

Memorial Hospital is a Level II trauma Center and has the only program in Souther Colorado committed to pediatric Trauma. CSCH is promoting Family Centered Care concepts within the hospital, thereby encouraging the family and the patient to be intimately involved in both making decisions about care and participating in healthcare activities.

Through community outreach programs such as Think First, Trauma Nurses Talk Tough, SAFE KIDS, Drive Smart, Buckle Up Baby, and SANE (Sexual Assault Nurse Examiner) the Colorado Springs Children’s Hospital at Memorial Hospital seeks to raise awareness and help reduce illness and injury.

COURSE DESCRIPTION
This perinatal/neonatal conference will focus on ethical, legal and economic decisions to:
* Genetic screening
* Newborn screening
* Egg Freezing, Preimplantation Genetic Diagnosis and Cloning
* Family Counseling
* Thresholds of Viability in the NICU
* Neonatal pain management
* Spiritual aspects of care
* Parent perspective
* And more!

AGENDA MAY 11, 2005, DAY 1
0730-0815 Welcome and Introductions
John Burrington, M.D.

0815-0900 Approachng Moral Problems: A Primer in Ethics
Douglas Diekema, M.D., MPH

0900-0945 Ethics of Genetic Testing
Janet Thomas M.D.

0945-1015 Counseling parents regarding Genetic Screening
Michelle Moore, MS. CGC

1015-1030 Break

1030-1110 Perspectives on Newborn Screening
Philip R. Vaughn M.D.

1110-1200 Ethical and Policy Issues of Expanded Newborn Screening
Lainie Friedman Ross, M.D., Ph.D.

1200-1230 Discussion of Morning Panel
moderated by Robert Telander M.D.

1230-1330 Lunch

1330-1415 Egg Freezing, Preimplanation Genetic Diagnosis and Cloning: Ethical Issues or Scientific Progress
Paul C. Magarelli, M.D., Ph.D.

1415-1515 Genes, Memes, or Law-Supreme?
Casey Brank, JD

1515-1530 Break

1530-1615 Afternoon Panel
moderated by John Burrington, M.D.

1615-1645 Review of day; Introduction to Family Centered Ethics
Douglas Diekema, M.D., MPH

1645 Adjuorn

1730-2000 Wine & Cheese Event

AGENDA MAY 12, 2005, DAY 2
0730-0740 Welcome and Introduction
Sue Townsend, M.D.

0740-0830 Prenatal diagnosis: more answers, more dilemmas
Elena Gates, M.D.

0830-0910 Maternal/Fetal Surgery
Elena Gates, M.D.

0910-1000 Minimizing Provider-Parent Conflicts
Tony Clark, M.D., JD

1000-1015 Break

1015-1115 Informed Consent
Robert “Skip” Nelson, M.D., Ph.D.

1115-1200 Parental Reaction to Withdrawing/Withholding Treatment
Teresa Savage, Ph.D., RN

1200-1300 Lunch

1300-1345 Tresholds of Viability in the NICU
John Colin Partridge, M.D., Ph.D., MPH

1345-1430 Unreasonable Parent Demads
Robert “Skip” Nelson, M.D., Ph.D.; Doug Diekema, M.D., MPH

1430-1500 Delivering “Bad News”
John Colin Partridge, M.D., Ph.D., MPH

1500-1515 Break

1515-1600 Ethical Issues in the Treatment of Pain in the NICU
John Lantos, M.D.

1600-1630 Speaker Panel
moderated by Sue Townsend, M.D.

1630-1730 Spiritual Aspects of Perinatal Ethical Dilemmas
Spiritual Panel

1730 Adjourn

1930 Dinner Lecture “Lets Play, You be the Parent”
Mark Duster, M.D.

AGENDA, MAY 13, 2005, DAY 3

0800-0810 Welcome and Introductions
Douglas Diekema, M.D., MPH

0810-0940 Parent Stories

0940-1000 Break

1000-1045 Parent Panel

1045-1130 Intersex Society
Kim Saviano

1130-1215 Intersex Panel
Bruce Blyth, M.D.; Clifford A. Bloch, M.D.; Kim Saviano

1215-1300 Lunch

1300-1400 Foregoing Nutrition and Hydration
Douglas Diekema, M.D., MPH

1400-1440 Case Discussion
Sue Townsend, M.D.

1440-1530 Summary of Presentations; Future Directions for 2007 Forum
Douglas Diekema, M.D., MPH