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Frequently Asked Questions

  • What is intersex?
  • How common is intersex?
  • Intersex conditions
    • How do I know if I have an intersex condition?
    • 5-alpha reductase deficiency
    • Androgen Insensitivity Syndrome (AIS)
    • Aphallia
    • Clitoromegaly (large clitoris)
    • Congenital Adrenal Hyperplasia (CAH)
    • gonadal dysgenesis (partial & complete)
    • hypospadias
    • I have a line along the underside of my penis
    • Klinefelter Syndrome
    • micropenis
    • mosaicism involving "sex" chromosomes
    • MRKH (Mullerian agenesis; vaginal agenesis; congenital absence of vagina)
    • ovo-testes (formerly called "true hermaphroditism")
    • Partial Androgen Insensitivity Syndrome (PAIS)
    • Progestin Induced Virilization
    • Swyer Syndrome
    • Turner Syndrome
  • What does ISNA recommend for children with intersex?
  • Does ISNA think children with intersex should be raised without a gender, or in a third gender?
  • What's wrong with the way intersex has traditionally been treated?
  • What do doctors do now when they encounter a patient with intersex?
  • Questions about Intersex Society of North America
  • How come many people have never heard of intersex?
  • Is a person who is intersex a hermaphrodite?
  • Does having a Y chromosome make someone a man?
  • Is intersex the same as "ambiguous genitalia"?
  • Show me how intersex anatomy develops
  • What is the current policy of the American Academy of Pediatrics on surgery?
  • What's the difference between being transgender or transsexual and having an intersex condition?
  • Why Doesn't ISNA Want to Eradicate Gender?
  • How can you assign a gender (boy or girl) without surgery?
  • What evidence is there that you can grow up psychologically healthy with intersex genitals (without "normalizing" surgeries)?
  • Does ISNA advocate doing nothing when a child is born with intersex?
  • What's ISNA's position on surgery?
  • Are there medical risks associated with intersex conditions?
  • How can I get my old medical records?
  • What do intersex and the same-sex marriage debate have to do with each other?
  • Who was David Reimer (also, sadly, known as "John/Joan")?
  • What's the history behind the intersex rights movement?

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Intersex conditions

The following is a list of disorders of sex development that sometimes involve intersex anatomy.

  • How do I know if I have an intersex condition?
  • 5-alpha reductase deficiency
  • Androgen Insensitivity Syndrome (AIS)
  • Aphallia
  • Clitoromegaly (large clitoris)
  • Congenital Adrenal Hyperplasia (CAH)
  • gonadal dysgenesis (partial & complete)
  • hypospadias
  • I have a line along the underside of my penis
  • Klinefelter Syndrome
  • micropenis
  • mosaicism involving "sex" chromosomes
  • MRKH (Mullerian agenesis; vaginal agenesis; congenital absence of vagina)
  • ovo-testes (formerly called "true hermaphroditism")
  • Partial Androgen Insensitivity Syndrome (PAIS)
  • Progestin Induced Virilization
  • Swyer Syndrome
  • Turner Syndrome
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How common is intersex?
How do I know if I have an intersex condition?
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